So excited! Just got word from Mass General that I’ll begin the clinical trial on Thursday, May 7th. We have to be there at 11 am. This is good. Means we don’t have to leave East Hartford until 8 – 8:30 am. I’ll have blood drawn, then I see Dr. Zhu, then I’ll be given the pills. Then I wait two hours and have blood drawn and an EKG. I have to fast 1 hour before taking the drug and 2 hours after taking the drug. On Friday we have to be there at 10 am and have blood drawn and an EKG. Then take the pills and 2 hours later have blood drawn and an EKG.
We will be staying overnight on Thursday. Julie and Kenny stayed at a nice place in Arlington a couple of years ago so we’ll be looking into staying there.
For the first month we’ll be going to Boston once a week. Then we’ll go every 2 weeks for the second month. Then we’ll go once a month after that.
We celebrated with Jay and Heather last Friday by going to dinner at Azteca. Had a great time!
Today I went to lunch with Diane, Alisha and Sharon. We went to Maggie McFly’s at the mall and ate outside. It was good and it’s a beautiful day!
Had a long day yesterday in Boston. Had blood drawn, then had a MUGA test of the heart. What an ordeal. They take blood and then mix it with radioactive material. That takes about a 1/2 hour or so. Then they inject this back into me. Then they put me in a bed, similar to the CT scan bed, and then ”bind’ me in so I won’t move and put a large camera over me and take pictures of my heart. This process took about an hour. We were there for a couple of hours. Then I had to go to an eye center a couple of blocks away and have my eyes tested.
We grabbed lunch on the road on the way home. When we got home we were exhausted and we both took a good long nap. Had a great sleep last night.
Looking forward to this next chapter in my journey fighting this cancer! I can’t thank you all enough for your continued love, prayers and support. We really appreciate it. You give me the strength to fight this fight!!!
Love you all!