Went to Boston on July 30th. Had an eye appointment, blood draw and met with Dr. Zhu. We talked about my side effects–muscle aches, hair loss, mouth inflammation and a fingernail coming away from my finger. We discussed the fact that I’m managing all these as best I can. He said, ‘this is exciting and can’t wait for the next CT scan’. Also got my pill supply for August. All is well. A few days later I found out that my CA19-9 number is now 24. The last blood work it was 25. After the huge jump from 242 to 36 at the end of May this number is anti-climatic. BUT it’s going down, so that’s a good thing.
I’ve been feeling really good and managing my side effects pretty well. My mouth has calmed down and only gets irritated once in a while. I have a couple of cold sores on the corners of my mouth, but they too are getting better. The funny thing is that my hair is growing!!!! There is no hair in the original bald spots, but it’s growing everywhere else. It’s coming in a mix of white, gray and black!!! The way my hair grows I may be sporting a new hairdo for Jay and Heather’s wedding!!!
Ray’s been busy helping out with the Jack & Jill party for Jason and Heather. That’s Saturday, August 15th at the P&F Pond in East Hartford from 2 pm to 8 pm. It’s going to be a Mexican Fiesta!!! It’ll be a fun time! There will be plenty of Mexican food, games, gambling, raffles–with some exciting stuff. Looking forward to seeing everyone and making it a special day for Jason and Heather.
I’ve been busy working on a few projects and doing day to day stuff like cleaning and laundry and grocery shopping. I’m enjoying that I can now do the simple things in life that I didn’t have the energy to do before.
I’ve acquired quite a wardrobe of scarves. And depending on my mood, I’ll wear a scarf or my wig when I go out.
Next MGH visit is August 20th for a CT scan and an ECHO cardigram (or something like that–something with my heart). Then August 27th for the regular eye exam, blood work, visit with doctor and supply of pills for September. Hope to have the CT scan results within a week or so after the scan. Will update when I get them.
